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  1. 'Parents Are the First Tutors of Their Child': Parents' Perception of Responsibility on Practicing Speech-Language Home Program During COVID-19 Lockdown
    Wong YY, Yap JS, Chu SY, Smith G, Woi PJ, Chai SC, et al.
    Child Care Health Dev, 2025 Jan;51(1):e70038.
    PMID: 39814563 DOI: 10.1111/cch.70038
    BACKGROUND AND OBJECTIVES: Some families faced difficulties accessing speech therapy in some areas of Malaysia and/or during the COVID-19 lockdown. Therefore, parent-mediated intervention could be one of the ways to solve this issue, as it has been proven to effectively improve communication skills among children with communication disorders. Hence, a Mandarin parental guidebook comprising a series of language stimulation activities was developed to explore the perception of parents of children with communication disorders, ranging from 3 to 6 years old, regarding the feasibility of (1) conducting speech-language home programs and (2) using a home-based parental guidebook as a tool to deliver a speech-language home program.

    DESIGN, SETTING AND PARTICIPANTS: Semistructured interviews were conducted with nine Malaysian parents of child (ren) with communication disorders, who fulfilled the inclusionary criteria. Parents had attempted the speech-language home program by using the guidebook prior to the interview. The participants were subjected to 45-min to 1-h interviews. The interviews were audio- or video-recorded for verbatim transcription. Thematic analysis was used for data interpretation.

    RESULTS: Four main themes were identified: (1) 'Golden Period': a guidebook to deliver speech-language home program, (2) perception of the speech-language home program among parents of children with communication disorders, (3) challenges faced by parents when practicing speech-language home program and (4) suggestions for improvements: parent's needs. The themes informed the perspective of parents towards the user experience of the parental guidebook, the feasibility of the speech-language home program and their recommendations. Overall, participants conveyed positive responses on the parental guidebook.

    CONCLUSIONS: Malaysian parents face difficulties in accessing speech therapy because of limited numbers of SLTs, geographical barriers, financial constraints, availability of facilities and so forth. Findings could assist SLTs in adopting a family-centred approach in their service delivery, thus increasing the cost-effectiveness of their service delivery.

    Matched MeSH terms: Communication Disorders/rehabilitation
  2. Reflections of Malaysian parents of children with developmental disabilities on their experiences with AAC
    Joginder Singh S, Hussein NH, Mustaffa Kamal R, Hassan FH
    Augment Altern Commun, 2017 Jun;33(2):110-120.
    PMID: 28387140 DOI: 10.1080/07434618.2017.1309457
    Parents play an important role in the successful implementation of AAC. Previous research has indicated that parents in different countries have varying perceptions about the use of AAC and face different challenges in its implementation. To date, there is limited information about the use of AAC by children in Malaysia or parents' views about its use. The aim of this study was to explore Malaysian parents' perception of AAC and their experience when supporting their children who use AAC. For this study, 12 parents of children with autism spectrum disorder and cerebral palsy were involved in semi-structured individual interviews. Qualitative content analysis was used to analyze interview data. Following analysis, three themes were identified: (a) impact of the use of AAC, (b) challenges faced, and (c) hopes and expectations. Participants reported that the use of AAC had a positive impact on their children, but that they faced challenges related to the child, the settings, and the system itself, as well as a lack of time and support. Findings from this study provide an insight for Malaysian speech therapists about the challenges faced by parents when supporting their children who use AAC, and how important it is to overcome these challenges to ensure successful implementation of AAC.
    Matched MeSH terms: Communication Disorders/rehabilitation*
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