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Cross-Cultural Adaptation and Psychometric Properties of the Children's Hope Scale in Indonesia: Adapting a Positive Psychosocial Tool for Adolescents With Thalassemia

Mardhiyah A, Panduragan SL, Mediani HS

J Nurs Meas, 2023 Nov 29;31(4):480-488.
PMID: 37945052 DOI: 10.1891/JNM-2021-0049

Background: Hope is regarded positively as a factor in achieving a higher quality of life, particularly in chronic disease patients. Objectives: This study aims to adapt, validate, and establish the reliability of the Children's Hope Scale (CHS) questionnaire in Indonesian adolescents with thalassemia. Methods: The current study used iterative mixed methods. The data collection procedure was divided into three stages: instrument translation and cultural adaptation, validation, and reliability. The Content Validity Index (CVI) was used to assess the translated instrument's content validity, importance, contextual relevance, and acceptability of wording. Confirmatory factor analysis (CFA) was used to determine the factor structure of the CHS. Pearson correlation analyses were used to determine the associations between the two hope subscales. Cronbach's alpha coefficient and test-retest data were used to determine its reliability. Results: The CVI values ranged from 0.80 to 1.00. The CFA has shown that the two-factor model has adequate fitness factors. The Cronbach's alpha for the Indonesian CHS was 0.705, and the test reliability rate (CI 95%) was 0.81 (.73-.91). Conclusion: The CHS is a valid and reliable instrument for assessing hope in Indonesia. Additional research should be conducted to adapt and evaluate the CHS in other samples and social context in order to verify the factor consistency.
Fulltext The Association between Hope and Quality of Life among Adolescents with Chronic Diseases: A Systematic Review

Mardhiyah A, Philip K, Mediani HS, Yosep I

Child Health Nurs Res, 2020 Jul;26(3):323-328.
PMID: 35004475 DOI: 10.4094/chnr.2020.26.3.323

Purpose: Hope has been identified as a protective factor that contributes to achieving a better quality to life, especially in patients with chronic disease. The purpose of this review was to synthesize current knowledge about the relationship between hope and quality of life among adolescents living with chronic illnesses.
Methods: We searched major English-language databases (PsycINFO, PubMed, and CINAHL) for studies from January 1, 2002 to July 12, 2019. Studies were included if they provided data on hope and its relationship with quality of life among adolescents with chronic diseases.
Results: In total, five articles were selected from the 336 studies that were retrieved. All five studies reported a positive correlation between hope and quality of life, such that people with a higher level of hope had a better quality of life. Hope was found to have direct and indirect effects on quality of life in adolescents with chronic diseases.
Conclusion: Healthcare professionals should make more efforts to enhance hope in adolescents with chronic diseases in order to improve their quality of life. Future studies exploring how hope develops in adolescents with chronic diseases and the long-term impact of hope on quality of life are necessary.
Fulltext Nursing Interventions to Improve Quality of Life Among Children and Adolescents with Thalassemia: A Scoping Review

Mardhiyah A, Panduragan SL, Mediani HS, Yosep I

J Multidiscip Healthc, 2023;16:1749-1762.
PMID: 37383528 DOI: 10.2147/JMDH.S415314

Thalassemia is an inherited blood disorder affecting hemoglobin synthesis which leads to chronic hemolysis that can reduce the quality of life of children with it due to the disease and the treatment given. However, the intervention still focuses on handling physical problems due to thalassemia. So that an intervention that focuses on improving the quality of life of children with thalassemia is needed. The purpose of this study is to explore interventions that could improve the quality of life of children with thalassemia. A scoping review study design was used in this study. The databases used are CINAHL, PubMed, and Scopus. Articles published from last five years (2018-2022), open access full-text, in English, and with the type of randomized controlled trial (RCT). The keywords used in English are "thalassemia or beta-thalassemia" AND "quality of life OR Life Quality OR Health-Related Quality of Life" AND "nursing intervention OR nursing care". From ten articles analyzed, we found five types of nursing intervention: Health Care Instructions, Psychological Program, Educational Program, Counseling Program, and Self-care Model, which were carried out for 1-7 months. The articles in this study are from Egypt and Iran. The sample in this study is the range of 20-173 respondents. The thalassemia patients in this study were in the age range of 7-35 years, but the average age of the patients was in their 20s. Nursing intervention can potentially improve the quality of life in children and adolescents with thalassemia. Nurses need to pay attention to the patient's age, family and patient knowledge about the disease, length of stay, and the patient's physical and psychological condition in providing nursing care to patients with thalassemia. Implementation of nursing is given by paying attention to the stages of child development and involving the family. Nursing interventions can be carried out by nurses or nurses teach families to intervene at home. This nursing intervention has the potential to improve the quality of life of patients with thalassemia while still taking into account the conditions of the patient and family in a comprehensive manner.
Fulltext A Scoping Review of Assertiveness Therapy for Reducing Bullying Behavior and Its Impacts Among Adolescents

Yosep I, Suryani S, Mediani HS, Mardhiyah A, Maulana I, Hernawaty T, et al.

J Multidiscip Healthc, 2024;17:1777-1790.
PMID: 38680879 DOI: 10.2147/JMDH.S460343

Bullying is a global problem in adolescents which has increased every year. One of the factors in the occurrence of bullying is the ability of interpersonal skills. This ability can build good relationships with assertive between adolescents and can prevent bullying. The purpose of this study is to describe assertiveness therapy for reducing bullying behavior and its impacts among adolescents. The method used in this study is scoping review. The search strategy used is PRISMA Extension for Scoping Reviews through three databases namely PubMed, CINAHL, and Scopus. The authors used inclusion criteria and exclusion criteria in the selection of articles. The major keywords used in the article search were bullying, assertiveness therapy, and adolescents. Data analysis used descriptive qualitative. The results showed that there were 10 articles that discussed assertive therapy. All articles show that assertiveness therapy can reduce bullying behavior and its impact significantly, such as reducing the impact of anxiety and increasing self-esteem. Assertiveness therapy methods carried out in the form of education, games, and role play. Education is carried out online and offline. Educational media is provided directly and through media such as educational videos which can be accessed at any time. Gender and cultural approaches are important aspects in the implementation of assertive therapy. Assertive therapy can improve interpersonal skills, social skills, empathy and assertiveness so that it can reduce bullying behavior and its impacts in adolescents. Then, this data becomes the basis for nurses to carry out assertive therapy as an effort to prevent and reduce bullying behavior in adolescents.