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Fulltext Factors influencing stress, depression and anxiety among caregivers of children with leukemia. [Faktor-faktor yang mempengaruhi stres, kebimbangan dan kemurungan dalam kalangan penjaga kepada pesakit leukemia kanak-kanak]

Natrah Rani, Faiz Daud, Hamidah Alias

Int J Public Health Res, 2018;8(2):988-997.
MyJurnal

Introduction. The care of children with leukemia requires a high degree of observation and attention to ensure that the recommended treatment by the specialists is well implemented. This could somehow affect the social functionality, increase stress, anxiety and depression among caregivers of children with leukemia. Thus, this cross-sectional study was conducted to examine the prevalence and factors influencing stress, depression and anxiety among caregivers of
children with leukemia.
Methods. Number of sample is 54 respondents. Data were measured using the Bahasa Malaysia version of DASS-21 which was validated in previous study.
Results The results showed that prevalence of low level stress among caregivers to children with leukemia was 88.9% while prevalence of high level stress was 11.1%. The prevalence of low level anxiety was 90.7% and the prevalence of
high level anxiety was 9.3%. The prevalence of low level depression was 96.3% and the prevalence of high level depression was 3.7%. There were several factors that significantly influenced the stress and depression among
the caregivers (p <0.05). Among the factors associated with stress status were the religion of caregivers and gender of the patients (p <0.05). Factors associated with depression status were the sex of caregivers and the relationship between caregivers and family members (p <0.05).
Conclusions. In conclusion, socio demographic factors and the relationship between caregivers and family members affect stress and depression among caregivers while factors of knowledge-level do not affect stress, anxiety and depression among caregivers. Strategies are needed to help reduce stress, anxiety and depression among caregivers of children with leukemia.
Keywords: Stress - Anxiety - Depression - Caregivers - Children with leukemia.
Fulltext The feasibility of testing otoliths and semicircular canals function using VEMPs and vHIT in Malaysian children

Nurul Ain Abdullah, Nor Haniza Abdul Wahat, Nor Haniza Abdul Wahat, Asma Abdullah, Curthoys, Ian S., Hamidah Alias

Jurnal Sains Kesihatan Malaysia, 2017;15(22):179-190.
MyJurnal

Early identification of any vestibular dysfunction and balance problem in children is crucial for their general well-being.
However the identification process, could be challenging and difficult as compared to adults. We conducted a preliminary
study to review our initial experience with ocular and cervical vestibular evoked myogenic potentials (oVEMPs and
cVEMPs), video head impulse test (vHIT) and Bruininks Oseretsky Test of Motor Proficiency II (BOT-2) on healthy children
and also to determine the feasibility of these tests in this population. Twenty one normal healthy children (12 boys and
9 girls), aged between 6 and 15 years old (mean age, 11.15 ± 2.54 years) participated in the study. They underwent
oVEMPs and cVEMPs elicited with bone conduction stimulus via minishaker and air conduction stimulus respectively. All
six semicircular canals were assessed using the vHIT. Bilateral coordination, balance, running, speed and agility which
are the three subsets of BOT-2 gross motor assessment were conducted for balance assessment. All subjects completed the
vestibular and balance assessment except for 1 subject who did not complete the vHIT vertical component. The response
rate was 100% for oVEMPs, cVEMPs, and BOT-2, and 95.24% for vHIT. The mean latency and mean amplitude for n10
oVEMPs were 8.88 ± 0.92 and 2.71 ± 1.29, respectively. The mean latency for cVEMPs p13, and n23 were 13.4 ± 1.35
and 21.76 ± 3.71, respectively with interamplitude mean of 97.57 ± 42.69. The vHIT mean for vestibular ocular reflex
(VOR) gain were >0.85 for lateral canals and > 0.65 for vertical canals. The mean scale score for bilateral coordination,
balance, running, speed, and agility for BOT-2 were 17.52 ± 3.40, 15.14 ± 3.65 and 13.9 ± 5.46, respectively. This study
suggest that VEMPs, vHIT, and BOT-2 are feasible test for vestibular and balance assessment in children. Apart from the
tests findings, it is hoped that the described experienced and adjustment made in assessing this young population could
also be applied by other relevant professional
Fulltext Effectiveness of printed educational material on nutrition management among paediatric oncology caregives

Chung, Jennifer, Nor Azira Zamada, Nurul Ain Najihah Baharun, Suhaina Sulaiman, Nurul Huda Razalli, Hamidah Alias

Jurnal Sains Kesihatan Malaysia, 2020;18(1):1-10.
MyJurnal

Malnutrition is a common occurrence during cancer treatment among pediatric cancer patients and without proper care, it can bring negative implications. The purpose of this study was to develop a printed educational material titled “Penjagaan Pemakanan untuk Penjaga Kanser Kanak-Kanak” (Nutrition Care for Children with Cancer) to help the caregivers to manage their child in terms of nutrition. The objective of this study was to evaluate caregiver’s knowledge, attitude and practice (KAP) before and after receiving the printed educational material and to evaluate the acceptance of the printed educational material among caregiver. This quantitative study (Quasi-Experiment) was conducted among pediatric oncology caregivers in Institute of Pediatrics Hospital Kuala Lumpur (IPHKL)(n=34) and Universiti Kebangsaan Malaysia Medical Center (UKMMC)(n=34). IPHKL served as the experimental group where the caregivers received the developed booklet meanwhile UKMMC served as the control group where the caregivers received a pamphlet published by Institut Kanser Negara titled “Terapi Diet Pesakit Kanser – Kesan Sampingan Rawatan dan Cara Mengatasinya” (Nutrition Care for Cancer – How to Overcome the Side Effects of the Treatment). Results from this study showed that there was a significant increase (p
X-linked dyskeratosis congenita in Malaysia

Hamidah A, Rashid RA, Jamal R, Zhao M, Kanegane H

Pediatr Blood Cancer, 2008 Feb;50(2):432.
PMID: 17417794
Health-related quality of life (HRQOL) among pediatric leukemia patients in Malaysia

Hamidah A, Wong CY, Tamil AM, Zarina LA, Zulkifli ZS, Jamal R

Pediatr Blood Cancer, 2011 Jul 15;57(1):105-9.
PMID: 21465639 DOI: 10.1002/pbc.23125

Health-Related Quality of Life (HRQOL) in pediatric leukemia patients in Malaysia has not been studied before. This was mainly due to a lack of databases on patients in the past. Many patients abandoned treatment or were lost to follow up. With more children now fully compliant and completing treatment nowadays, with higher cure rate, HRQOL has become important for our patients. The purpose of the current study was to determine the HRQOL scores in children with acute leukemia and to compare the scores for those on maintenance chemotherapy with those off-treatment as well as to determine factors which might affect HRQOL.
Prevalence and parental perceptions of complementary and alternative medicine use by children with cancer in a multi-ethnic Southeast Asian population

Hamidah A, Rustam ZA, Tamil AM, Zarina LA, Zulkifli ZS, Jamal R

Pediatr Blood Cancer, 2009 Jan;52(1):70-4.
PMID: 18937312 DOI: 10.1002/pbc.21798

The purpose of the current study was to determine the prevalence of use of complementary and alternative medicine (CAM) by children with cancer and to compare the characteristics of CAM users and CAM nonusers.
Exploring the beliefs of caregivers about the caregiving experiences of children with acute lymphoblastic leukemia in Malaysia

Chong ASS, Mahadir A, Hamidah A, Rizuana IH, Afifi L, Chan CMH

Belitung Nurs J, 2022;8(3):204-212.
PMID: 37547110 DOI: 10.33546/bnj.2083

BACKGROUND: Cancer is one of the major leading causes of childhood death, and the most common type is acute lymphoblastic leukemia. The survival rate has increased in recent years; however, the long patient trajectory may trigger psychological distress among caregivers as they play an active role in ensuring that the child's basic needs are met. Being in a patient-focused system, the needs of caregivers may be neglected.
OBJECTIVE: This study aimed to explore the caregivers' beliefs on children with acute lymphoblastic leukemia caregiving experiences in order to promote their well-being.
METHODS: Caregivers from thirteen families of children with acute lymphoblastic leukemia participated in this phenomenological study. NVivo 12 was used for the thematic analysis of the data. Consolidated criteria for reporting qualitative research (COREQ) were used in this study.
RESULTS: Overall, five main themes for caregivers' beliefs were identified from their responses: 1) dietary intake with emphasis on its importance in aiding recovery and its potential influence on cancer complications, 2) childcare which emphasized the need to be strong and self-sacrifice, 3) treatment which reflected the use of home or natural remedies and caregivers' negative perception towards chemotherapy, 4) causes of cancer believed to be linked to early childcare choices on food, beverage, and stress imposed on the child, and 5) source of beliefs that included doctors, online platforms, personal encounters and information on food labels.
CONCLUSION: Caregivers' beliefs are varied and nuanced, formed in a multicultural social background of Malaysia. These findings provide knowledge for future supportive cancer care for patients, their caregivers, and the treatment outcome in the Malaysian context. Nurses, who play an essential role between healthcare professionals and patients and/or their caregivers, can be empowered to provide psychological support, early detection of psychological distress, and exploration of caregiver beliefs, given that the number of clinical psychologists in Malaysia is lacking, and there is greater preference for care to be provided by doctors or nurses.
Successful treatment of very large congenital infantile fibrosarcoma

Hamidah A, Reena M, Halim ARA, Ibrahim S, Eguchi M, Zarina AL, et al.

Pediatr Int, 2011 Oct;53(5):768-770.
PMID: 21955012 DOI: 10.1111/j.1442-200X.2011.03358.x
Fulltext Parental reports of behavioural outcome among paediatric leukaemia survivors in Malaysia: a single institution experience

Hamidah A, Sham Marina M, Tamil AM, Loh CK, Zarina LA, Jamal R, et al.

Trop Med Int Health, 2014 Oct;19(10):1177-84.
PMID: 25047756 DOI: 10.1111/tmi.12358

To determine the behavioural impact of chemotherapy in survivors of acute lymphoblastic leukaemia (ALL) treated with chemotherapy only and to identify treatment-related or sociodemography-related factors that might be associated with behavioural outcome.
Physical activity of pediatric patients with acute leukemia undergoing induction or consolidation chemotherapy

Tan SY, Poh BK, Chong HX, Ismail MN, Rahman J, Zarina AL, et al.

Leuk. Res., 2013 Jan;37(1):14-20.
PMID: 23099236 DOI: 10.1016/j.leukres.2012.09.005

This study aimed to assess the physical activity levels of pediatric patients with acute leukemia undergoing chemotherapy. Thirty-eight pediatric patients and matched controls, aged 3-12 years old, were measured for weight, height, and other anthropometric parameters. Physical activity was assessed using actical accelerometer and activity log book. Patients recorded significantly lower mean total activity counts (26.2±30.2 cpm vs. 192.2±68.8 cpm; p<0.01) and spent more time in sedentary activities (1301±121 min vs. 1020±101 min; p<0.001) compared to controls. They also achieved fewer 1-5-min bouts of moderate-vigorous physical activity (MVPA) compared to controls (1.50±5.95 vs. 37.38±40.36; p<0.001). In conclusion, patients had lower physical activity level and intensity; and simple exercise intervention programs may be needed to minimize the detrimental effects of prolonged sedentary behaviors.