Affiliations 

  • 1 Division of Rheumatology and Clinical Immunology, Department of Medicine, Queen Mary Hospital, The University of Hong Kong, Hong Kong, China
  • 2 University Medical Center and College of Medicine, De La Salle Medical and Health Sciences Institute, Dasmariñas, Cavite, Philippines
  • 3 Department of Pediatrics, Faculty of Medicine, Universiti Kebangsaan Malaysia, Kuala Lumpur, Malaysia
  • 4 Division of Clinical Immunology & Pediatric Rheumatology, Advanced Centre for Immunology & Rheumatology, Kathmandu, Nepal
  • 5 Department of Dermatology, Institute of Biomedical & Health Sciences, Hiroshima University, and Department of Dermatology, Hiroshima City Hiroshima Citizens Hospital, Hiroshima, Japan
  • 6 Allergy Immunology Unit, Department of Pediatrics, Advanced Pediatric Centre, Postgraduate Institute of Medical Education and Research, Chandigarh, India
  • 7 Department of Clinical Immunology and Allergy, Auckland City Hospital, Auckland, New Zealand
  • 8 Department of Internal Medicine, Seoul National University Hospital, Seoul, Republic of Korea
  • 9 Western Sydney University and Campbelltown Hospital, Campbelltown, Australia
  • 10 Center of Excellence for Allergy and Clinical Immunology, Division of Allergy, Immunology and Rheumatology, Department of Pediatrics, Faculty of Medicine, Chulalongkorn University, Bangkok, Thailand
  • 11 Department of Rheumatology, Allergy and Immunology, Tan Tock Seng Hospital, Singapore, Singapore
  • 12 Hereditary Angioedema International (HAEi), Fairfax, Virginia, USA
Clin Exp Allergy, 2025 Jan 12.
PMID: 39800561 DOI: 10.1111/cea.14623

Abstract

This study demonstrates that patient advocacy groups significantly enhance medication availability and improve diagnosis of hereditary angioedema (HAE), particularly in emerging economies within the Asia-Pacific region. This study supports integrating patient advocacy group involvement into management guidelines, emphasising their role in improving access to diagnostics and treatment for HAE.

* Title and MeSH Headings from MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine.