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  1. Nurasikin Mohamad Shariff, Lee, Siew Pien
    MyJurnal
    People with mental health problem in Malaysia require access to spiritual care from their mental health services. However, the literature, which is dominated by Western scholars, brings the broad conception of spirituality into debate, which does not fit the paradigm of the religious worldview in countries such as Malaysia. This paper provides a narrative overview of the tensions inherent in the concept of spirituality as delivered in the literature. It begins a discussion on the place of spirituality in mental health care while highlighting the problematic concept of spirituality currently seen in the literature. This paper thus provides recommendations for future research on the need for particularising the concept of spirituality within mental healthcare in Malaysia.
  2. Lee, Siew Pien, Nurasikin Mohamad Shariff
    MyJurnal
    This article attempts to provide an overview of issues related to children’s participation in decisions relating to health care. It sets the discussion in the context of current debate about children’s participation in health care decisions and explores the extent to which children want to participate in the decision. This article concludes that children mostly occupy a minimal role in communication and decisions regarding their care. The patterns of participation of children in communication and decisions are differing and fluctuate between the children and within the same child throughout their hospitalisation, depending on the participating child, their preferences, and requirements at a particular time.
  3. Lee SP, Haycock-Stuart E, Tisdall K
    Enferm Clin, 2019 09;29 Suppl 2:715-719.
    PMID: 31324547 DOI: 10.1016/j.enfcli.2019.04.109
    OBJECTIVE: The study was to examine the role of children in communication and decisions regarding their nursing care in a paediatric oncology ward in Malaysia.

    METHODS: The principles of focused ethnography underpinned the study design. Fieldwork took place over six months in one 32-bedded paediatric oncology ward. Twenty-one children, ranging in ages from 7 to 12 years diagnosed with leukaemia, their parents and 19 nurses participated. Data collection consisted of participant observation and semi-structured interview.

    RESULTS: Hospitalized children employed different roles of passive or active participants during the communication and decisions about their nursing care. Importantly, children are more likely to become active participants in the communication process when nurses interact directly with them, listening to them and giving them opportunities to ask questions in either the presence or absence of their parents. Equally, children are likely to be more passive participants when nurses do not communicate directly with them, choosing instead to directly interact with the child's parents. This study highlighted that the role of children as active and passive participants is not permanently engaged by individual children, rather their role fluctuates throughout the hospitalization journey. The fluctuations of a child's role are highly dependent on their preferences: how and when they want to be included in the communication and decisions process. Children's roles in communication and decisions are also varied and dependent on their particular contexts. A child's participation in one situation does not consistently reflect their participation with their role in other situations. The ways in which the children participate were oscillated throughout their hospitalization.

    CONCLUSIONS: This study provides empirical insight into children's experiences of triadic (child-nurse-parent) interaction during the decisions about their nursing care in paediatric oncological setting. A key recommendation calls for the development of assessment strategies to determine the 'ideal' position children would like to occupy, at any given point in time, throughout their hospitalization.

  4. Che Abdullah CA, Saidi S, Lee SP
    Enferm Clin, 2021 04;31 Suppl 2:S152-S156.
    PMID: 33849151 DOI: 10.1016/j.enfcli.2020.12.012
    This review is conducted to understand the self-management experience among the patients throughout their cancer trajectory. Five databases were inputted systematic searches from February to April 2018. Several important themes emerged from the review, including their needs, facilitators, barriers, strategies, and provision of support towards self-management. The needs for sufficient and appropriate information was the most severe concern among nasopharyngeal cancer patients. Understanding self-management from the patients' perspectives may draw attention to specific concerns for self-management. However, the study of nasopharyngeal cancer patients is still under-researched. Therefore, exploratory research to understand their unique self-management experiences may help to design the care and support tailored to them to provide more holistic yet individualized care.
  5. Ab Hakimee NI, Atan A, Sutantri S, Lee SP
    Malays J Med Sci, 2023 Oct;30(5):181-191.
    PMID: 37928781 DOI: 10.21315/mjms2023.30.5.15
    BACKGROUND: The unique nature of adolescence makes youths highly susceptible to high-risk behaviours. Thus, prevention and health promotion are imperative for this influential age. Despite various approaches towards health promotion, knowledge related to adolescent health is still low among Malaysian adolescents. This study aims to investigate adolescent health information-seeking behaviours related to high-risk behaviours.

    METHODS: A cross-sectional study was conducted among 370 adolescents aged 10 years old-19 years old throughout Malaysia. The questionnaire used was adapted from a previous study and the pilot study resulted in Cronbach's alpha of 0.85. IBM SPSS Statistics version 25.0 software was used for data analysis at two statistical levels: descriptive and inferential (Mann-Whitney U test).

    RESULT: The most important health information needs related to high-risk behaviour according to the adolescents were 'violence' (3.72 score out of 5), 'sexual activity-related disease' (3.64 score out of 5) and 'physical activity and effect of lack in physical activity' (3.61 score out of 5). 'Physician' (4.01 score out of 5) and 'the internet' (3.95 score out of 5) were the most important sources for obtaining health information related to high-risk behaviours. The main criterion for the quality of health information was the 'validity and reliability of the information' (4.55 score out of 5). The findings indicate that adolescents have a positive attitude towards health information-seeking behaviour, although slight differences between boys and girls are exhibited. The most common barrier to health information seeking experienced by adolescents is 'difficulty in determining the quality of information found'.

    CONCLUSION: Adolescents tend to use professional and informal sources, have good criteria in the selection of information and have a considerably high interest in seeking health information related to high-risk behaviour.

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