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Diagnosis and management of infantile epileptic spasms syndrome (IESS) in Gulf Cooperation Council (GCC) countries: Expert consensus statement

Bashiri FA 1 , Hundallah K 2 , Al-Baradie R 3 , Al-Otaibi A 4 , Ismayl O 5 , AlMalik ME 6 Show all authors , Muthaffar OY 7 , Futaisi AA 8 , Kurdi D 9 , Tawari AA 10 , AlSowat D 11 , Shafi SA 12 , Ali A 13 , AlHajjar LM 14 , Aldakhil A 15

Affiliations 

  • 1 Pediatric Neurology Division, Department of Pediatrics, College of Medicine, King Saud University Medical City, King Saud University, Riyadh, Saudi Arabia. Electronic address: fbashiri@ksu.edu.sa
  • 2 Pediatric Neurology Division, Department of Pediatrics, Prince Sultan Military Medical City, Riyadh 13317, Saudi Arabia. Electronic address: dr.k.hundallah@gmail.com
  • 3 Neuroscience Center, King Fahd Specialist Hospital, PO Box 15215, Dammam 314444, Kingdom of Saudi Arabia. Electronic address: raidah_albaradie@hotmail.com
  • 4 Pediatric Neurology Division, Department of Neurophysiology, National Neuroscience Institute, King Fahad Medical City, As Sulimaniyah, Riyadh 12231, Saudi Arabia. Electronic address: adalotaibi@kfmc.med.sa
  • 5 Department of Child Neurology, Sheikh Khalifah Medical City, Al Karamah Street, Abu Dhabi, United Arab Emirates. Electronic address: oismayl@hotmail.com
  • 6 Department of Pediatric Neurology, Mediclinic Al Jowhara Hospital, Al Ain City, United Arab Emirates. Electronic address: halmalik1007@gmail.com
  • 7 Pediatric Neurology Division, Department of Pediatrics, Faculty of Medicine, King Abdulaziz University, Jeddah, Saudi Arabia. Electronic address: oymuthaffar@kau.edu.sa
  • 8 Pediatric Neurology Division, Child Health Department, College of Medicine and Health Sciences, Sultan Qaboos University, P.O.Box 35, P.C 123 Al Khoud, Sultanate of Oman. Electronic address: amnaf@squ.edu.om
  • 9 Pediatric Neurology Division, Department of Pediatrics, College of Medicine, King Saud University, Riyadh 12372, Saudi Arabia. Electronic address: dkurdi@ksu.edu.sa
  • 10 Pediatric Neurology Division, Department of Pediatrics, Al Sabah Hospital, Ministry of Health, Sabah Health Region, Shuwaikh Industrial, State of Kuwait. Electronic address: asmatawari@yahoo.com
  • 11 Pediatric Neurology Division, Department of Pediatrics, King Faisal Specialist Hospital & Research Centre, Riyadh 11211, Saudi Arabia. Electronic address: dalsowat@kfshrc.edu.sa
  • 12 Neurology Division, Epilepsy and EEG Fellowship Program, Department of Pediatrics, Prince Sultan Military Medical City, Riyadh 13317, Saudi Arabia. Electronic address: dra.shatha@gmail.com
  • 13 Pediatric Neurology Division, Department of Pediatrics, AlSalam Specialist Hospital, Riffa 80278, Bahrain. Electronic address: aymanali131@gmail.com
  • 14 Itkan Health Consulting Group, Al Olaya, Riyadh 12221, Saudi Arabia. Electronic address: lynnmshajjar@gmail.com
  • 15 Itkan Health Consulting Group, Al Olaya, Riyadh 12221, Saudi Arabia. Electronic address: aldakhila98@gmail.com
Seizure, 2024 Apr;117:174-182.
PMID: 38432081 DOI: 10.1016/j.seizure.2024.02.015

Abstract

Despite the availability of international recommendations for the management of Infantile Epileptic Spasms Syndrome (IESS), there is a lack of recommendations adapted to the local context of clinical practice of pediatric neurology in the Gulf Cooperation Council (GCC) countries. By an initiative from the Saudi Pediatric Neurology Society (SPNS), a literature review was performed and an expert panel comprised of 13 pediatric neurologists from all GCC countries (Saudi Arabia, Kuwait, Bahrain, Oman, Qatar, and the United Arab Emirates) was subsequently convened to discuss all issues related to the management and diagnosis practices of IESS in the GCC. The overall aim of this consensus document was to develop practical recommendations to support the care of patients with IESS in the GCC and to reflect on how clinical management approaches compare with those adopted internationally.

* Title and MeSH Headings from MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine.

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