Assessing informal caregiver burden as well as knowledge on positioning and feeding of stroke patients in a tertiary hospital in Kelantan, Malaysia

A significant proportion of stroke patients in Malaysia are supported by informal caregivers who often lack sufficient training. This lack of preparation contributes to an escalation in caregiver burden. A cross-sectional study was conducted using Caregiving Knowledge Questionnaire (CKQ-my) and Zarit Burden Interview (ZBI) with convenient sampling. The findings revealed that caregivers had limited knowledge regarding proper positioning, and most of them reported experiencing mild burden. Multiple logistic regression analysis showed that informal caregivers who were also the primary caregivers for severe stroke patients experienced a higher burden. Recognising and understanding the factors that contribute to caregiver burden in stroke cases is essential for developing effective programs to improve the quality of life for both stroke survivors and their informal caregivers.