The quality of life and body image disturbances of Turner syndrome patients in Malaysia: a cross-sectional study

Yusof AAB 1 , Chii MLS 1 , Yusoff NIM 1 , Kama RNIFRM 1 , Raj JR 1 , Ghani NAA 1 Show all authors , Ali A 1 , Syn JHS 2 , Shah SA 3 , Ishak NA 4 , Akinyi AS 5 , Zainuddin AA 6

Affiliations 

  • 1 Department of Obstetrics and Gynaecology, Faculty of Medicine, The National University of Malaysia (UKM), Jalan Yaacob Latif, Bandar Tun Razak, Cheras, 56000, Kuala Lumpur, Malaysia
  • 2 Department of Paediatrics, Faculty of Medicine, The National University of Malaysia (UKM), Jalan Yaacob Latif, Bandar Tun Razak, Cheras, 56000, Kuala Lumpur, Malaysia
  • 3 Department of Community Health, Faculty of Medicine, The National University of Malaysia (UKM), Jalan Yaacob Latif, Bandar Tun Razak, Cheras, 56000, Kuala Lumpur, Malaysia
  • 4 Department of Obstetrics and Gynaecology, Kulliyyah of Medicine, Indera Mahkota Campus, International Islamic University Malaysia, 25200, Kuantan, Pahang, Malaysia
  • 5 Department of Obstetrics and Gynecology, Division of Surgery, Kenyatta National Hospital, University of Nairobi, Nairobi, Kenya
  • 6 Department of Obstetrics and Gynaecology, Faculty of Medicine, The National University of Malaysia (UKM), Jalan Yaacob Latif, Bandar Tun Razak, Cheras, 56000, Kuala Lumpur, Malaysia. aniameliaz71@gmail.com
BMC Womens Health, 2023 Nov 17;23(1):614.
PMID: 37978374 DOI: 10.1186/s12905-023-02745-x

Abstract

BACKGROUND: Turner Syndrome (TS) is a rare sex chromosome abnormality occurring in 1 in 2500 female live births. To date, there is limited data on TS patients in Malaysia. This study aimed to investigate the quality of life (QoL) and body image disturbances among adult population with TS in comparison to age-matched controls in a tertiary hospital in Kuala Lumpur: Hospital Chancellor Tuanku Mukhriz, Universiti Kebangsaan Malaysia (HCTM, UKM).

METHODS: This was a cross-sectional study carried out in HCTM, UKM, Kuala Lumpur. TS participants who attended clinic in HCTM, UKM and controls who were hospital staff members were recruited via purposive sampling. TS participants' sociodemographic and clinical profiles were retrieved from medical records. Two validated, translated questionnaires; World Health Organization Quality of Life (WHOQOL-BREF) questionnaire and Body Image Disturbances Questionnaires (BIDQ) were completed by participants.

RESULTS: A total of 34 TS patients were approached and 24 (70.5%) of them participated in this study. Their median (IQR) age was 24.0 (7.0) years and their responses were compared to 60 age-matched healthy females as controls [median age (IQR) = 24.0 (8.0) years]. The most common medical problem in TS participants was premature ovarian insufficiency (n = 23; 95.8%). There were no significant differences between TS and control groups' median scores (overall QOL; 4.00 vs. 4.00, general health; 3.50 vs. 4.00, physical health; 14.86 vs. 15.43, psychological health; 14.67 vs. 14.00 and environment; 15.00 vs. 15.50) of the different WHOQOL-BREF domains. However, TS participants were found to score 13.33 against 16.00, lower than the control group (p 

* Title and MeSH Headings from MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine.

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