Affiliations 

  • 1 Breast Cancer Research Group, Cancer Research Malaysia, Subang Jaya, Malaysia
  • 2 Breast Cancer Welfare Association, Petaling Jaya, Malaysia
  • 3 Department of Surgery, University Malaya Cancer Research Institute, Kuala Lumpur, Malaysia
  • 4 KanWork Cancer Society, Seri Kembangan, Malaysia
  • 5 Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Australia
  • 6 Breast Cancer Working Group, International Consortium for Health Outcomes Measurement, Cambridge, Massachusetts, USA
  • 7 School of Surgery, University of Western Australia, Subiaco, Australia
  • 8 Department of Surgery, Subang Jaya Medical Centre, Subang Jaya, Malaysia
Psychooncology, 2019 01;28(1):147-153.
PMID: 30346074 DOI: 10.1002/pon.4924

Abstract

OBJECTIVES: Patient-reported outcomes (PROs) in high-income countries (HICs) suggest that physical, emotional, and psychological needs are important in cancer care. To date, there have been few inconsistent descriptions of PROs in low-income and middle-income Asian countries. Using a standard questionnaire developed by the International Consortium for Health Outcomes Measurement (ICHOM), we compared the perceived importance of PROs between patients in Malaysia and those in HICs and between clusters of Malaysian women.

METHODS: Breast cancer patients were recruited from three Malaysian hospitals between June and November 2017. We compared the proportion of patients who rated PROs as very important (scored 7-9 on a 9-point Likert scale) between Malaysian patients and data collected from patients in HICs via the ICHOM questionnaire development process, using logistic regression. A two-step cluster analysis explored differences in PROs among Malaysian patients.

RESULTS: The most important PROs for both cohorts were survival, overall well-being, and physical functioning. Compared with HIC patients (n = 1177), Malaysian patients (n = 969) were less likely to rate emotional (78% vs 90%), cognitive (76% vs 84%), social (72% vs 81%), and sexual (30% vs 56%) functioning as very important outcomes (P 

* Title and MeSH Headings from MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine.