Affiliations 

  • 1 Department of Basic and Clinical Neuroscience, Institute of Psychiatry, Psychology & Neuroscience at King's College and King's College Hospital NHS Foundation Trust, London, UK
  • 2 Parkinson's Victoria Board, Victoria, Australia
  • 3 Department of Neuroscience, Movement Disorders Unit - ERN Rare Neurological Diseases, University of Padua, Italy
  • 4 Professorship for Palliative Care, Institute of Nursing Science and Practice, Paracelsus Medical University, Salzburg, Austria
  • 5 The Academy of Science, the Royal Society of Thailand, Bangkok, Thailand
  • 6 Department of Physical Therapy, Speech Therapy, and Occupational Therapy, Medical School, University of Sao Paulo, Sao Paulo, Brazil
  • 7 Division of Neurology, Department of Medicine; and the Mah Pooi Soo & Tan Chin Nam Centre for Parkinson's & Related Disorders, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia
  • 8 Department for Elderly Medicine North Bristol NHS Trust, Bristol, UK
  • 9 Northumbria Healthcare NHS Foundation Trust, North Tyneside General Hospital, Tyne and Wear, UK
  • 10 Instituto De Medicina Molecular João Lobo Antunes, Lisbon, Portugal
  • 11 Department of Palliative Care, Cicely Saunders Institute, Policy and Rehabilitation, King's College London, London, UK
  • 12 Department of Medicine, Division Neurology, University of Alberta, Edmonton, Canada
Expert Rev Neurother, 2021 06;21(6):615-623.
PMID: 33905283 DOI: 10.1080/14737175.2021.1923480

Abstract

Introduction: Although in some countries, palliative care (PC) still remains poorly implemented, its importance throughout the course of Parkinson's disease (PD) is increasingly being acknowledged. With an emergence of Severe Acute Respiratory Syndrome Coronavirus-2 (SARS-CoV-2) pandemic, growing emphasis has been placed on the palliative needs of people with Parkinson's (PwP), particularly elderly, frail, and with comorbidities.Areas covered: The ongoing COVID-19 pandemic poses an enormous challenge on aspects of daily living in PwP and might interact negatively with a range of motor and non-motor symptoms (NMS), both directly and indirectly - as a consequence of pandemic-related social and health care restrictions. Here, the authors outline some of the motor and NMS relevant to PC, and propose a pragmatic and rapidly deployable, consensus-based PC approach for PwP during the ongoing COVID-19 pandemic, potentially relevant also for future pandemics.Expert opinion: The ongoing COVID-19 pandemic poses a considerable impact on PwP and their caregivers, ranging from mental health issues to worsening of physical symptoms - both in the short- and long-term, (Long-COVID) and calls for specific, personalized PC strategies relevant in a lockdown setting globally. Validated assessment tools should be applied remotely to flag up particular motor or NMS that require special attention, both in short- and long-term.

* Title and MeSH Headings from MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine.